Well, the long awaited liver biopsy results didn't produce the expected answers and marched us on to yet another, final, test which is an MRI Cholangiogram. By process of elimination we have been left with two suspects one of which is primary sclerosing cholangitis, the other cholangiocarcinoma. If it proves to be the former he will continue to be treated with steroids, if the latter it may be possible to insert a stent to drain the liver to relieve the symptoms.
Normally an MRI is an outpatient job, but he is now so weak that he will have to go in for an overnight stay and because he has such a fear of hospitals this will be a great trial for him, but they will allow me to say with him for as long as I want to.
So where are you now God? You are in my heart loving this man that has loved me all these years and is now so ill, helping me to me to return a small amount of the love he has shown me and giving me the strength to look after him.
Douglas Adams
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"It is no coincidence that in no known language does the phrase 'As pretty
as an Airport' appear."
1 day ago
17 comments:
I know God is with you, though He must seem distant at times. This has to be so difficult for OG but but just as hard for you, the woman who loves him and who has been at his side all these years. I think, at this season of joy, dealing with such difficulties can be especially painful! All you can do is push forward, dear one, as bravely as you can and hold onto OG with all the intensity that you can, love him, support him and trust that the Lord whatever comes is God's will.
My prayers are with you daily.
OG doesn't happen to be taking Diclofenac is he?
I know when we get to this stage that I think we all question if there is a higher being that is ignoring or helping.
Then all we can do is ask why. Why us? Why him? Why me?
I pray (and I truly do not know who to) that they find what is truly wrong with OG and that they help him.
Stay with him. Your presence will bring him so much comfort and reassurance and you can also know immediately what is going on. And if you have to - keep him in the hospital until he is stronger. Just in case.
We love you both so much, just to let you know we're in on the prayer thing too. Because we know it works.
You are in my thoughts and prayers. Take one day at a time and try to be strong.
xxx
Sarah
He is there........ loving you both. He won't ever leave you, though you think he has right now.
I am so sorry that you are having this drawn out problem and hope that they can get OG some real help soon. it is really sad that he has become so week.
It only seemed like yesterday that he was rollerskating & decorating your house.
It is frightening the way things can change so fast. Prayers for you both. X
My thoughts & prayers are with you, as always. I hope you can take some strength from this. Love & hugs from across the ocean.
Mare Freeborn
Love and prayers. Flagmaker
I am trying to remember that this is a season of joy RNSANE, I must remember that I have so much to be thankful for.
OG is taking dexamthasone aims. But you might call it something different. And I don't have any chance of keeping him in hospital. He is still a stubborn mule!
Thanks so much anonymous. We love you too.
This is where "one day at a time" becomes so important Rosiero.
XXX to you too Sarah. Thanks
Do you know Maggie, we were looking back to October. On the 11th OG was mobile and on 16th he was in a wheelchair. Guillain Barre is a vicious condition.
Thanks Mare.
And thanks to you too Flagmaker. You were the one that first introduced me to the concept of a High Power. I remember the first telephone call we had when I was babbling on about all my problems you told me to "Let go and let God". I felt that a big weight had been lifted from me. Mind you, I soon took the weight back again!!! I love you.
Still reading u every day & still praying & thinking of u both. Leave for Farnham tomorrow and return Sunday. Wedding on Saturday. Will catch up on return. Love hugs and prayers for both .
P in a Pod & Contessa.
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